University of Virginia Health System

Lung Transplantation

Links to Transplant and Related Organizations

Second Wind Lung Transplant Association, Inc. was formed on April 17, 1995, by a small group of people who wanted to provide information about lung transplantation to others. Today, Second Wind is an international organization with over 400 members scattered throughout the United States and in Australia, South Africa, the United Kingdom, and Germany.

The Alpha 1 National Association is a member-based nonprofit organization founded in 1991 to identify those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy, and research. The Association has over 60 volunteer-led support groups around the US which are supported through annual grass roots grants.

The mission of the Cystic Fibrosis Foundation  --a donor-supported, nonprofit organization--is to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease.

PH Central is an internet resource for Pulmonary Arterial Hypertension (PAH), providing information and support for patients, caregivers and medical professionals.

The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease. The goals of the foundation are to organize, marshal the forces of the scientific community, raise LAM from obscurity, and conquer it in a decade.

UNOS brings together medicine, science, public policy and technology to facilitate every organ transplant performed in the United States. UNOS assists transplant doctors, patients, and members of the public by helping to ensure that organs are procured and distributed in a fair and timely manner.

SRTR supports the ongoing evaluation of the scientific and clinical status of solid organ transplantation in the United States. It is administered by the University Renal Research and Education Association (URREA) with the University of Michigan.

The SRTR supports ongoing evaluation of the scientific and clinical status of solid organ transplantation including kidney, pancreas, liver, intestine, heart, lung, and heart-lung.