Health Literacy Bibliography

http://www.healthsystem.virginia.edu/internet/som-hlc/home.cfm

Ad Hoc Committee on Health Literacy. Health Literacy: Report of the Council on Scientific Affairs. JAMA. 1999; 281:552-557.

Baker DW, Parker RM, Williams MV, et al. The Health Care Experience of Patients with Low Literacy.  Archives of Family Medicine. 1996; 5: 329-334.

Baker DW, Parker RM, Williams MV, Clark WS, Nurss J. The Relationship of Patient Reading Ability to Self-Reported Health and Use of Health Services.  Am. J Public Health. 1997; 87(6): 1027-1030.

Barnes LP. The Illiterate Client: Strategies in Patient-Teaching. MCN. 1992; 17:127.

Betancourt JR, Green AR , Carrillo JE. Cultural Competence in Health Care: Emerging Frameworks and Practical Approaches. The Commonwealth Fund, 2002. www.cmwf.org

Blue AV.  The Provision of Culturally Competent Health Care.  Web site Medical University of South Carolina College of Medicine, 2001; http://www.musc.edu/deansclerkship/rccultur.html

Davis DW, Parker RM, Williams MV, et al. The Health Care Experience of Patients with Low Literacy. Arch Fam Med. 1996; 5: 329-334.

Davis TC, Bocchini JA Jr., Fredrickson D, Arnold C, Mayeaux EJ, Murphy PW, et. Al. Parent Comprehension in Polio Vaccine Information Pamphlets.  Pediatrics.1996; 97(6): 804-810.

Davis TC, Crouch MA, Wills G, Miller S, Abdehou DM.  The Gap Between Patient Reading Comprehension and the Readability of Patient Education Materials.  Journal of Family Practice. 1990; 31 (5): 533-538.

Davis TC, Fredrickson DD, Bocchino C, Arnold C, et.al. Improving Vaccine Risk/Benefit Communication With an Immunization Education Package: A Pilot Study.  Ambulatory Pediatrics. 2002; 2(3):193-200.

Davis TC, Holcombe RF, Berkel HJ, Pramanik S, Divers SG. Informed Consent for Clinical Trials: A Comparative Study of Standard versus Simplified Forms. J Nat’l Cancer Institute. 1998; 90(9): 668-674.

Davis TC, Michielutte R, Askov EN, Williams MV, Weiss BD.  Practical Assessment of Adult Literacy in Health Care. Health Education & Behavior. 1998; 25(5): 613-624.

Doak CC, Doak LG, Root JH.  Teaching Patients with Low Literacy Skills. Second ed. Philadelphia : J.B. Lippincott Company, 1996.

Doak CC, Doak LG, Friedell GH, Meade CD.  Improving Comprehension for Cancer Patients with Low Literacy Skills: Strategies for Clinicians.  Ca Center J Clin, 1998; 48:151-162.

Fadiman A. The Spirit Catches You and You Fall Down. New York : Farrar, Straus and Giroux,; 1997.

Hammerschmidt DE, Keane MA. Institutional Review Board (IRB) Review Lacks Impact on Readability of Consent Forms for Research. Am. Journal of the Medical Sciences, 1992; 304(6): 348-351.

Jackson RH, Davis TC, Bairnsfather LE, et al. Patient Reading Ability: An Overlooked Problem in Health Care.  Southern Med J; 1991; 84(10): 1172-1175.

Kefalides PT.  Illiteracy: The Silent Barrier to Health Care.  Annals of Internal Medicine, 1999; 130(4): 333-336.

Kirsch IS, Jungebut A, Jenkins L, Kolstad A.  Adult Literacy in America: a first look at the results of the National Adult Literacy Survey.  Washington : Dept of Education (US); 1993. Available from ERIC Document Reproduction Service, Springfield , VA ; No. ED358375.

Lasater L, Mehler PS. The Illiterate Patient: Screening and Management. Hospital Practice (Off ed) 1998; 163-170.

Mayer G, Kuklierus A. What to Do When your Child Gets Sick and What to Do for Teen Health. Institute of Healthcare Advancement , Whittier, CA. 1-800-434-4633, www.iha4health.org

Meade CD, Howser DM. Consent Forms: How to Determine and Improve Their Readability. Oncology Nursing Forum, 1992; 19(10): 1523-1528.

McPhee SJ, Clinical Crossroads: Caring for a 70-Year-Old Vietnamese Woman. JAMA. 2002; 287: 495-501.

National Academy on an Aging Society.  Understanding Health Literacy: New Estimates of the Costs of Inadequate Health Literacy. Presentation at Pfizer Conference on Health Literacy, Promoting Health Literacy: A Call to Action.  Washington , DC . October, 1998.

Nurss J, El-Kebbi IM, Gallina DL, et al. Diabetes in Urban African Americans: Functional Health Literacy of Municipal Hospital Outpatients with Diabetes.  Diabetes Educator, 1997; 23(5) 563-568.

Ong LML, DeHaes JCJM, Hoos AM, Lammes FB. Doctor-Patient Communication: A Review of the Literature. Soc. Sci. Med, 1995; 40(7): 903-918.

Paasche-Orlow MK, Brancati FL. Readability Standards for Informed Consent Forms as Compared with Actual Readability. NEJM, 2003, 348(8): 721-726.

Parikh NS , Parker RM, Nurss JR, et al. Shame and Health Literacy: The Unspoken Connection.  Patient Education and Counseling, 1996; 27: 33-39.

Parker RM, Baker DW, Williams, MV, Nurss, JR. The Test of Functional Health Literacy in Adults. J Gen Intern Med, 1995; 10: 537-541.

Plimpton S, Root J. Materials and Strategies That Work in Low Literacy Health Communication. Public Health Reports, 1994; 109(1): 86-92.

Schillinger D, Grumbach K, Piette J, et al.  Association of Health Literacy with Diabetes Outcomes. JAMA, 2002; 288(4): 475-482.

Spandorfer JM, Karras DJ, Hughes LA, Caputo C.  Comprehension of Discharge Instructions by Patients in an Urban Emergency Department.  Annals of Emergency Medicine, 1995; 25:71-74.

Sullivan LM, Dukes KA, Harris L, Dittus RS, Greenfield S, Kaplan SH.  A Comparison of Various Methods of Collecting Self-Reported Health Outcomes Data Among Low-Income and Minority Patients.  Medical Care. 1995; 53(4) AS183-AS194.

The National Work Group on Literacy and Health.  Communicating with Patients Who Have Limited Literacy Skills: Report of the National Work Group on Literacy and Health.  Journal of Family Practice, 1998; 46.

Treachy JT, Mayer DK.  Perspectives on Cancer Patient Education.  Seminars in Oncology Nursing, 2000; 16(1): 47-56.

Weiss BD, Blanchard JS, McGee DL, et al. Illiteracy Among Medicaid Recipients and Its Relationship to Health Care Costs.  Journal of Health Care for the Poor and Underserved, 1994; 5(2): 99-111.

Weiss BD, Coyne C. Sounding Board: Communicating with Patients Who Cannot Read. NEJM, 1997; 337 (4): 272-3.

Williams MV, Bajer DW, Parker RM, Nurss JR.  Relationship of Functional Health Literacy to Patients’ Knowledge of their Chronic Disease: A Study of Patients with Hypertension and Diabetes. Archives of Internal Medicine, 1998; 158(2): 166-172.


Health Literacy Bibliography—Additional Resources

Baker DW. Reading between the lines—deciphering the connections between literacy and health. J Gen Intern Med. 1999; 14(5): 315-7   and
Health literacy among Medicare enrollees in a managed care organization. JAMA. 1999; 281(6):545-51.

Baker DW, Gazmararian JA, Williams MV, Scott T, Parker RM, et al. Functional Health Literacy and the risk of hospital admission among Medicare managed care enrollees. Amer J of Public Health. 2002; 92(8): 1278-1283.

Baker DW, Parker RM, Williams MV, etal. The health care experience of patients with low literacy. Archives of Family Medicine. 1996; 5(6): 329-334.

Barron WM, Kuczewski MG. Unanticipated harm to patients: deciding when to disclose outcomes. Jt. Comm J Qual Saf. 2003; 29(10):551-5.

Beers BB, et al. Disparities in health literacy between African American and non-African American primary care patients. J Gen Intern Med. 2003; 18(Supplement 1): 169.

Berkman ND, DeWalt DA, Pignone MP, Sherifan SL, Lhor KN, et. al. Literacy and Health Outcomes. Summary, Evidence Report/Technology Assessment No.87.  AHRQ Publication No. 04-E007-1. Rockville , MD , January 2004 (call 800-358-9295)

Bodenheimer T, Lorig K, et. al Patient self-management of chronic disease in primary care. JAMA. 2002; 288(19): 2469-75.

Crane JA. Patient comprehension of doctor-patient communication on discharge from the emergency department. J. Emerg.Med 1997; 15:1-7.

Elderkin-Thompson V, Waitzkin H. Differences in clinical communication by gender.  J. Gen Intern Med. 1999; 14(2):112-21.

Fitzpatrick M, Burke L, Lee D, editors.  What To Ask the Doc. 2003. RN Interactive, Inc.

Frankel RM, Stein T, Krupat E, The Four Habits Approach to Effective Clinical Communications. The Permanente Group, Physicians Education and Development (Oakland , CA ) 2003.

Gallagher TH, Waterman AD, Ebers AG et al. Patients’ and physicians’ attitudes regarding the disclosure of medical errors. JAMA. 2003; 289(8): 1001-7.

Gandhi TK, Burstin HR, Cook EF, Puopolo AL, Haas JS, Brennan TA, Bates DW. Drug complications in outpatients. J. Gen Intern Med. 2000; 15:149-154.

Gazmararian JA, Baker DB, Williams MV, Parker RM, et. al Health literacy among Medicare enrollees in a managed care organization. JAMA 1999; 281(6): 545-551.
Howard DH, Gazmararian JA, Parker RM. The relationship between medical costs and health literacy. American Journal of Medicine. 2005;

Hughes, S. The use of non face-to-face communication to enhance preventive strategies. J Cardiovas Nursing. 2003; 18(4): 267-273.

Kalichman SC.   Functional health literacy in people living with HIV-AIDS. Am. Journal of Preventive Medicine. 2000; 18(4):325-331.

Kaplan SH, Greenfield S, et. al Characteristics of physicians with participatory decision-making styles. Ann Intern Med 1996; 124(5): 497-504.

Kickbusch IS. Health literacy: addressing the health and education divide. Health Promotion International. 2001; 16(3):289-297.

Kindig D, Chair. Prescription to End Confusion, IOM Report, 2004. http://books.nap.edu/catalog/10883.html

Lasater L, Mehler PS. The illiterate patient: screening and management.  Hosp Pract (Off Ed) 1998; 33(4): 169-170.

Lee ED, Rosenberg CR, Sixsmith SM, et. al. Does a physician-patient language difference increase the probability of hospital admission? Acad Emerg Med. 1998; 5:86-89.

Levinson W, Roter DL et al. Physician-patient communication.  The relationship with mal-practice claims among primary care physicians and surgeons.  JAMA. 1997; 277(7): 553-9

Leyva M, Sharif I, Ozuah PO . Health Literacy Among Spanish-Speaking Latino Parents with Limited English Proficiency. Ambulatory Pediatrics, 2005; 5(1): 56-59

Mayeaux EJ Jr, Murphy PW, Arnold C, Davis TC, et al. Improving patient education for patients with low literacy skills. Am Fam Physician. 1996; 53(1): 205-11.

National Work Group on Literacy and Health. Communicating with patients who have limited literacy skills. J Fam Pract. 1998; 46(2):168-76.

Nikolopoulos TP et al Development of spoken language grammar following cochlear implantation in prelingually deaf children.  Archives Otolaryng Head & Neck Surgery. 2004; 130:629-633.

Office for Civil Rights; Title VI of the Civil Rights Act of 1964; Policy Guidance on the Prohibition Against National Origin Discrimination as It Affects Persons with Limited English Proficiency, Federal Register/Vol 67, No.22

Parker RM, Ratzan SC , Lurie N. Health literacy: a policy challenge for advancing high-quality health care.  Health Affairs. 2002; 22(4):147-153.

Root J, Stableford S. Easy-to-read consumer communications: a missing link in Medicaid managed care. J Health Polit Policy Law.  1999; 24(1):1-26.

Roter DL and Hall JA, Doctors Talking with Patients/Patients Talking with Doctors: Improving Communication in Medical Visits, 1992; Auburn House, Westport , CN

Rudd R, et al An Overview of Medical and Public Health Literature Addressing Literacy Issues: An Annotated Bibliography. Report #14. Cambridge , MA . National Center for the Study of Adult Learning and Literacy     and
Annual Review of Adult Literacy and Learning, Commings J, Garners B, Smith C, Editors. New York : Jossey-Bass.

Sackett DL, Snow JC. Compliance in Health Care. 1979; Johns Hopkins University Press, Baltimore.

Sharf BF. Reading the vital signs: research in health care communication.  Commun Monogr 1993; 60(1): 35-41.

Schwartzberg JG, VanGeest JB, Wang CC, editors. Understanding Health Literacy: Implications for Medicine and Public Health, AMA Press. 2005.

Wagner EH, Austin BT, VonKorff M. Improving outcomes in chronic illness. Managed Care Quarterly. 1996; 4(2):12-25.

Williams MV, Parker RM, Baker DW, et al.  Inadequate functional health literacy among patients in two public hospitals, JAMA. 1995; 274(21):1677-1682.

Wilson JF. Current clinical issues: The crucial link between literacy and health. Ann Internal Med. 139(10): 875-878.

Youmans SL. Functional health literacy and medication use: the pharmacist’s role. Ann Pharmacother. 2004; 37(11): 1726-1729.

http://www.cahealthliteracy.org  California Health Literacy site

www.cpha.ca/literacyandhealth  Canadian site. Canadian Public Health Association

http://www.nifl.gov/lincs/about/about.html  National Institute for Literacy’s Literacy Information and Communication System.

http://www.nlm.nih.gov/  So search: “Health Literacy”.  For current bibliographies in Health Literacy.

http://medline.cos.com  Fact sheets for patients

Selection of articles and research and Pfizer/Clearinghouse for Clear Communication:

www.pfizerhealthliteracy.com

www.clearhealthcommunication.org

www.askme3.org/PFCHC/about.asp

National Center for Family Literacy: www.famlit.org or 1-877-FAMLIT

AMA Foundation: www.amafoundation.org/go/healthliteracy or healthliteracy@ama-assn.org

Deaf/Hard of Hearing:  
 www.aafp.org  Do search for “Deaf Interpreters”
www.msn.com  Do search for “Deaf Interpreters”
www.vrid.org  Virginia Registry for Interpreters for the Deaf
www.acponline.org/journals/news/nov97/learncom.htm  and www.annals.org/cgi/content/full/140/5/356?ck=nck
www.consumer.att/relay/tty

Cultural/Interpreters
International Rescue Committee:  www.theirc.org
AAFP re: Use of interpreters:  www.aafp.org/fpm/20040600/37gett.html
Center for Healthcare Strategies, Inc. (For both cultural sensitive and general health literacy info):
            www.chcs.org  Enter “Health Literacy” in Search box, click on Advanced Search. When asked  for Topic, choose “Racial and Ethnic Health Disparities”, then under Subtopic, choose “Health  Literacy”

www.m-mc.org/  Media/Material Clearinghouse—many useful pictographs and tools from a group associated with the Johns Hopkins Bloomberg School of Public Health

National Center for Family Literacy: www.famlit.com or 1-877-FAMLIT The NAALS survey: www.nces.ed.gov/naal/ 
 www.ericdigests.org/1996-2/health.html
Or http://childstats.ed.gov/intnllinks.asp?field=Subject1&value=Education
Or www.cdc.gov/HealthyYouth/CSHP/

 

 

Revised: 2/3/06