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Internet Resources

See also our comprehensive list of electronic discussion lists.

State & Regional Early Intervention Programs

Chicago ARC's Early Intervention Program

Nebraska Network for Children and Families, with subsections on Government Resources, Parent Resources, Teen Parent Project, Health Resources, Education Resources, Organizations, Miscellaneous Resources, NNCF Project Office and Reference Room, and also a large section on special education in NE and about preparing an IFSP.

Ontario Federation for Cerebral Palsy

Parenting

Web sites providing support and information to families of children with a gastrostomy:

www.specialchild.com/tips01.html
Parent of children with feeding tubes report their successful tips.
wellness.ucdavis.edu/child_health/special_needs/gastrostomy_feedings/index.html
Reviews supplies, feeding techniques, cleaning and care of the gastrostomy and equipment.

www.cincinnatichildrens.org/family/pep/homecare/2008/
Reviews care of the gastrostomy tube

www.cincinnatichildrens.org/family/pep/homecare/2014/
Reviews method of gravity feeding

www.chsys.org/check/homecare/page2.html
Reviews gastrostomy feeding technique with a focus on common issues (e.g., redness, granulation tissue, bloating), potential causes and interventions.

The National Parent Network on Disabilities (NPND)

National Parenting Center: nine of the world's most renowned childrearing authorities provide parents with comprehensive and responsible guidance

Parenting Q&A: ask and answer questions

Parent Soup : chat with other parents, ask experts questions, or search a large database of articles on children

The CP Parent Listserve Archive

CP Parent Resource Center

Virginia Institute for Developmental Disabilities

Parent Education Advocacy Training Center- in Virginia http://www.vcu.edu/partnership/

National Organizations

National Disability Sports Alliance (NDSA)

National Info. Center for Children & Youth with Disabilities

American Academy for CP & Developmental Medicine

United Cerebral Palsy 800-USA-5UCP (800-872-5827)

American Association for Leisure & Recreation

Council for Exceptional Children

National Disability Sports Alliance

www.ndsaonline.org email is info@ndsaonline.org

National Early Childhood Technical Assistance Center: to find "early intervention" and special education for children with disabilities. Look for directory list for resources for each state or territory.

Exceptional Parent Magazine

livingwithcerebralpalsy.com/

Adults With Cerebral Palsy We Do Matter

Medical Resources

Alliance for Technology Access: to help children who have disabilities gain access to the benefits of adaptive technology

Technical Assistance Alliance for Parent Training & Info. Centers

Neurology Web Forum at Massachusetts General Hospital

Therapy Resources

OT-Peds Threads: a site where pediatric occupational therapists discuss issues found in pediatric OT

A yoga class for children taught by pediatric occupational and physical therapists.

Contact Ruth rag2a@virginia.edu (434) 243-6869

Yoga is good for the physical body and for the mind. This program adapts traditional yoga teachings to meet the special needs of children with disabilities. The approach is non-competitive and provides a foundation for building trust and self-confidence.

(click above images to enlarge - photos by Bill Goldeen)