Autumn 1999
Volume 1, Issue 2

Contents:


NAGCPP Makes Its Debut!


"Does Your Child Have Difficulty Eating or Growing?"


"Transfer"


DON'T MISS OUR FIRST ISSUE, SPRING 1999







REMINDER!

Has your child had his/her annual follow up measurement ? Please contact your site at once! (We need your contribution!)

Welcome to our 2nd issue of The Beanstalk!

We hope to keep everyone who has participated in our research up to date.

We also want to take this opportunity to thank all of you who have participated in our annual follow up measurements. It was great to see how much you grew in one year!

Dr. Richard Stevenson was recently interviewed about NAGCPP and this is what he said:"When you spend each day of your childhood in a wheelchair, unable to feed yourself, you have a whole different growth pattern from that of able-bodied children! Separate standards of measurement are needed.We're trying to find the best methods of providing nutrition for developing their skills, ability to learn, and muscle strength. We also want to make the feeding routine easier, help parents worry less, and make kids healthier so they don't miss as much school."

Send us your ideas for our next issue. Thanks again for your interest in our quest to help all children with CP.

We hope you will contact us with any questions or suggestions for additional items you would like to see. PLEASE mention this newsletter to a friend or a doctor¹s office so that others can learn about our research! We have found our best advertising is through word of mouth! We want to thank all the pediatricians, family physicians, the therapists, equipment vendors and the primary caretakers (moms & dads) for their time and help with this study. We hope this research benefits EVERY child with CP, and you will read about it here in The Beanstalk first!









at right : Dr. Richard D. Stevenson and Vivienne Spauls, an Anthropometrist (one who measures the body parts of children) and project coordinator at UVa for the North American Growth in Cerebral Palsy Study, perform a head circumference measurement on Sylvia. This measurement, routinely taken as part of the study, measures brain growth in children. (Photo by: Bill Faust.)










at left: Precise knee height measurement, taken here by a trained anthropometrist, is carefully recorded and added to the growing volume of factual data which is the basis of new insights. Our sincerest appreciation goes to the children and parents who have supported this effort. (Photo by: Bill Faust.)






We remind you we are still evaluating and measuring children! This is all preliminary data! The Beanstalk is a publication of NAGCPP. The views do not necessarily reflect those of the funding sources. Articles, resources and announcements are for information only. Contact Vivienne Spauls, Editor, with questions or comments. Please check your address label and let us know if your address has changed or is incorrect, if you are receiving duplicate copies, or if you would like to be removed from the mailing list. e-mail: 4cpgrow@virginia.edu, Phone: 1-888-4CP-GROW





Financial support for NAGCPP has been provided by the...


American Academy for Cerebral Palsy and Developmental Medicine
United Cerebral Palsy Research and Educational Foundation
Genentech Foundation for Growth and Development
National Center for Medical Rehabilitation Research of the National Institutes of Health
Kluge Research Fund and the Children¹s Medical Center of the University of Virginia