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patient education : 04007--Traumatic Brain Injury Resource Guide

Provides local and national resources for patients with a traumatic brain injury and their families.

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    TRAUMATIC BRAIN INJURY ― RESOURCE GUIDE

    When your loved one is hospitalized with a Traumatic Brain Injury (TBI), you have many questions and concerns. What care will they be receiving? What does the future hold? Coping with TBI is a lifelong experience for both patients and families. This  handout was created to help you locate answers to many of those questions.

    Many websites are available that can provide you with information regarding TBI. However, the information may not always be current or appropriate for your particular situation. The following are some websites that have been chosen for their accuracy and professionalism. They address recovery time in the hospital as well as long-term rehabilitation.  Finally, we encourage you to bring your questions to the nurses, physicians, therapists, and other health care workers who are caring for your loved one.

    GENERAL INFORMATION AND SUPPORT

    Brain Injury Association of America

    www.biausa.org

    Phone: 1-800-444-6443

    This is the premier site for information and references on TBI. Medical, rehabilitative, and support information are just a few of the things you can find on this very comprehensive site.

     

    Centre for Neuro Skills

    www.neuroskills.com

    Phone: 1-800-922-4994

    This site is provided by a rehabilitation

    center and is medically oriented, but

    provides a lot of useful current information about neurological injuries.

     

    Brain Injury Association of Virginia

    www.biav.net

    Phone: 703-761-0750

    This is the state affiliation of the Brain Injury Association of America. Educational and support information specific to Virginia is provided. It also has a listing of Virginia support groups.

     

    Headinjury.com

    www.headinjury.com

    Phone: 206-621-8558

    This is a non-profit site operated by head injury survivors. It provides information, discussion groups, and  self-assessments.

     

    Traumatic Brain Injury Survival Guide

    www.tbiguide.com

    Phone: 231-929-7358

    This site is written by Dr. Glen Johnson, a neuropsychologist. It is written in plain

    language and addresses the medical aspects of TBI, the types of symptoms the injured person may experience in the future, and how to deal with those symptoms. 

    Brainline

    www.brainline.org

    Phone: 703-998-2020

    This site offers information and resources about preventing, treating, and living with TBI.  Webcasts and a newsletter are available.  This site serves anyone whose life has been affected by TBI. 

    LOCAL BRAIN INJURY REHABILITATION RESOURCES

    Charlottesville - Brain Injury Support Team

    Contact Carol Ragland: dblmiracle@hotmail.com

    Meets the 3rd Tuesday of the month from 6:30-8:00pm @  UVA Health South Rehab Hospital  - 1st floor conference room at 515 Ray C. Hunt Dr. - Charlottesville, VA.

    Virginia Department for Aging and Rehabilitative Services (DARS)

    www.vadrs.org/cbs/biscis.htm -- Phone: 1-800-552-5019

    The Brain Injury Services Coordination (BISC) Unit, located within DARS' Community Based Services Division, serves as a point of contact for  customers seeking general or agency-specific information about brain injury resources in Virginia. There are multiple state-funded Brain Injury Services programs overseen by DARS.  Refer to the website for more specific information on current programs and types of services provided.

    The Bridge Line (formerly Virginia NeuroCare and Building Bridges)

    Leigh Wion – Program Administrator                  Daniela Pretzer – Executive Director

    Physical Offices/Clubhouse Program:  953 2nd St. SE, Suite 410 – Charlottesville, VA

    www.thebridgeline.org  --  Phone: 434-989-1274

    The mission of The Bridge Line, a non-profit organization, is to support and facilitate vocation training, residential living, and successful community re-entry, as well as to enrich the lives of persons impacted by brain injuries.  

    Wilson Workforce Rehabilitation Center

    www.wwrc.net/braininjuryservices.htm  --  Phone: 1-800-345-9972

    This Rehabilitation facility is located in Fishersville, VA. They provide residential and

    outpatient programs including rehabilitation therapy/assessments, vocational training, driving evaluations, wheelchair assessments, brain injury clinics, neuropsych assessments, support groups, and more. 

    Crossroads to Brain Injury Recovery

    info@c2bir.org  --  Phone:  540.568.8923

    This agency provides community-based services for individuals in the Shenandoah Valley who are affected by brain injury.  Services include but are not limited to case management, life skills training, education, outreach, and advocacy.  Serves children, youth, and adults with a documented brain injury affecting two or more life areas.  Free of cost but a limited number of slots are available.

    BOOKS RECOMMENDED BY FAMILIES

    Living with Brain Injury: A Guide for Families, by Richard Senelick. 3rd ed, HealthSouth Press, 2013.  Also available in the UVa Health Sciences Library. 

    Over My Head: A Doctor’s Own Story of Head Injury From the Inside Looking Out by Claudia Osborn. Published by Andrews McMeel Publishing, 2000

    Where is the Mango Princess? A Journey Back from Brain Injury by Cathy Crimmins.

    Published by Vintage Books, 2001. 

    UVA BRAIN INJURY RESOURCES

    Acquired and Traumatic Brain Injury Clinic – Pediatrics                                       UVA Battle Building, 4th Floor - 1204 W. Main St.                                           www.uvahealth.com (search for Acquired Brain Injury Clinic)                                   Phone: 434.924.5272

    Pediatric patients are seen for evaluation and treatment of acquired or traumatic brain injuries. 

    Brain Injury and Sports Concussion Clinic                                                             UVA Neurology Clinic – 500 Ray C. Hunt Dr. in Charlottesville, VA                                                                                                                                                                                                                     www.uvahealth.com (search for Brain Injury Concussion Clinic)                                 Phone: 434-98-BRAIN (434-982-7246)

    This interdisciplinary clinic provides comprehensive care for those with mild TBIs/concussions.

    Neurobehavioral Intervention Team                                                                          This informal, multidisciplinary consult service assists in the management of neurological or neurosurgical patients whose behaviors make them a danger to themselves or others, or otherwise prevent them from basic participation in nursing or therapy services. Teams are coordinated by the Unit Manager, and include representatives as needed from multiple disciplines. Behavioral management plans are developed for patients and family training is completed as needed. 

    Brain Injury Quality Support Team                                                                             This is a multidisciplinary group dedicated to improving the care of patients with brain injuries.  The group’s mission is to promote optimal treatment and offer support to UVA patients with brain injuries and their families, as well as promoting community education and awareness.  “Like” us on Facebook at www.facebook.com/BIQST!

    Virginia Driving Safety Laboratory                                                                            UVA West Complex, Barringer IV - 1335 Lee Street
    Phone: 434-924-5314

    This lab provides comprehensive driving assessments for aging drivers and people with cognitive or physical limitations following stroke or traumatic brain injury. Service include vision testing; assessment of driving knowledge, coordination, and reasoning; driving simulation tests; and therapy for road rage and driving-related phobias.  Reports are not sent to the Department of Motor Vehicles unless requested by the patient.

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